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Showing posts with label Disability Rights. Show all posts
Showing posts with label Disability Rights. Show all posts

Thursday, March 2, 2017

In praise of disability activism.


Many of us in the disability community take part in some sort of activism whether it be solely online or in-person or a combination of the two.  I applaud all of our efforts.  It really comes down to our level of comfort dealing with people en masse, a.k.a. the number of spoons we have available to us on any given day.  Many of us have comorbidities that impact our choices for activism, but that does not mean that the choice we make to take part and express ourselves should be deemed any less important than others are.  I for one feel more at home online and have been known to take part in many different protests via twitter and blog posts over the years.  Online activists/protesters do not have to hear verbal shouts of derision or face any form of physical violence in-person, that is not to say that one does not encounter violence of another sort where people feel more free to show disdain and spout vile hateful ableist rhetoric online, whatever comes into their minds all the while cowardly hiding behind the safety of their computer screens. Cyber-bullying is just as invasive and in many cases even more so than in-person bullying because when one is home and alone one can still be targeted and harassed no matter the distance away the “attacker” is in the physical world. Such attacks cause just as much PTSD as their in-person physical ones, but in many cases the pain and harm they cause is even deeper.  I do not like to invite such attacks so do not engage with individuals one on one online as others in my community to do on a regular basis, I could not take the self-hate and internalized ableism that would be a result of such attacks from awful people trolling the net for the sole purpose of creating havoc and leaving harm in their wake. Face it people many of these perpetrators spew their vitriol for their sheer entertainment and when we take the bait we are playing right into their hands. 


I in turn use general political, etc. hashtags and take part in #cripthevote or just speak my mind in my own personal twitter and also sign online petitions.  Those who do not engage others in-person but find it makes it easier to express yourselves online do not think that this diminishes the value of your activism; we too are fighting to make the world a better place for disabled people.  I applaud Autistics who do engage one on one ,on a regular basis, you are brave beyond any measure I can express because time and time again you go to battle with these trolls, lick your virtual wounds and there you are again back in the fray fighting another day.  Many of those who do go toe to toe with such hateful trolls find strength in the community and the fact that we do support their efforts knowing full well our own limitations and lack of spoons to do it ourselves, but as they say someone has too.  I applaud the TRUE Autistic warriors taking on non-Autistic trolls online who only like to bait and taunt us for their own enjoyment and care nothing of learning the truth about what life is like for #ActuallyAutistic people.  I thank you for your fighting.  Stand strong against adversity, with every demon vanquished another arrives in your path, let them not get you down, keep fighting, but also remember to look out for number 1 as they say, safe-care and knowing ones limits is paramount.  Also do not forget to ask for help and advice when you need it, others may be able to shoulder some of the burden when you are out of spoons. Don’t let anyone diminish your efforts with hate-speech. Fight the good fight.


In solidarity. 


Tuesday, April 21, 2015

Discrimination against Autistic persons - UN Human Rights


Discrimination against Autistic persons
Wednesday, 1 April 2015, 3:28 pm
Press Release: United Nations Human Rights Commissioner

Discrimination against Autistic persons, the rule rather than the exception – UN rights experts

GENEVA (30 March 2015) – Two United Nations human rights experts today called for an end to discrimination against Autistic persons and a celebration of diversity. Speaking ahead of World Autism Awareness Day, the Special Rapporteurs on the rights of persons with disabilities, Catalina Devandas Aguilar, and on the right to health, Dainius PÅ«ras, noted that about one per cent of the world’s population -some 70 million people- is estimated to be on the Autism Spectrum worldwide.

“As part of human diversity, Autistic persons should be embraced, celebrated and respected. However, discrimination against Autistic children and adults is more the rule rather than the exception.

In many countries, Autistic persons lack access to services which would support, on an equal basis with others, their right to health, education, employment, and living in the community. When available, services are too often far from human rights friendly or evidence-based.

Autistic persons are particularly exposed to professional approaches and medical practices which are unacceptable from a human rights point of view. Such practices – justified many times as treatment or protection measures – violate their basic rights, undermine their dignity, and go against scientific evidence.

Autistic children and adults face the proliferation of medicalized approaches relying on the over-prescription of psychotropic medications, their placement in psychiatric hospitals and long-term care institutions, the use of physical or chemical restraint, electro-impulsive therapy, etc. This may be particularly harmful and lead to the deterioration of their condition. All too often, such practices amount to ill-treatment or torture.

The Autism Spectrum should be understood from a broader perspective, including in research. We call for caution about enthusiastic attempts to find the causes of Autism and ways to ‘cure’ Autism through sophisticated but not necessarily ethical research. Autism as a condition is a critical challenge for modern health systems, in which we need to ensure that the practice and science of medicine is never again used to cause the suffering of people.

More investment is needed in services and research into removing societal barriers and misconceptions about Autism. Autistics persons should be recognized as the main experts on Autism and on their own needs, and funding should be allocated to peer-support projects run by and for Autistic persons.

It is about providing individuals and families with the necessary skills and support to have choice and control over their lives. It is also about equal opportunities, access to inclusive education and mainstream employment to achieve equality and rights enjoyment by Autistic persons. It is about promoting their independence and respecting their dignity.
Autistic persons should be respected, accepted and valued in our societies, and this can only be achieved by respecting, protecting and fulfilling their basic rights and freedoms.”

Tuesday, November 18, 2014

Urgent Appeal for Action to Save an Autistic Adult!

 
JUSTICE FOR NELI!!
 
 

Neli Latson an Autistic adult who has been wasting away in jail for the past 4 years, he is in Solitary Confinement, all because he was waiting outside a library until it opened a few short years ago and was approached by police and then attacked one due to his Autism, he was scared and the flight or fight instinct kicks in, we should not be punished for being Autistic.  Being Autistic is NOT a crime!  Police are not as versed in how to interact with us as much as you might think.  This is an example of justice that needs to be served.  Please appeal to the Governor of Virginia, Terry McAuliffe to release one of my community.  Being Autistic is not a crime and should not be treated as such.  He is scared and confused and does not deserve such treatment.  Let’s flood the governor’s office with appeals for justice for Neli he is languishing in prison.  #FreeNeli!  #JusticeforNeli!  Please help to stop this cruelty!   

Please telephone Governor Terry McAuliffe’s office at: (804) 786-2211  Or write to his postal address: 1111 East Broad Street, Richmond, VA 23219  Or email him using the following form: https://governor.virginia.gov/constituent-services/Communicating-with-the-governors-office
 
JUSTICE FOR NELI!!
 
********************************************


Ruth Marcus: In Virginia, a cruel and unusual punishment for Autism
November 14, 2014, by Ruth Marcus, Washington Post – Opinions  
 
Reginald Latson’s path to solitary confinement began four years ago as he waited for the public library to open in Stafford County, Va.  
Latson, known as Neli, has an IQ of 69 and is Autistic. Teachers and therapists describe him as generally sweet and eager to please.  
He is also a black man, now 22, who on the day in question was wearing a hoodie — which prompted a concerned citizen to call police about a suspicious person loitering outside the library. 
The ensuing encounter should have been nothing more than a harassing annoyance. Instead, not surprising given the rigid thinking and “fight or flight” instincts characteristic of those with Autism, it escalated after Latson refused to provide his name and was restrained by the police officer when he tried to leave.  
The altercation that followed left the officer seriously injured and propelled Latson into an inescapable cycle of misbehavior followed by ever more punishment. Latson has engaged in acts that can be characterized as criminal, yet he is less a criminal than a victim of his disability.  
Meanwhile, he is being punished in the most severe manner the criminal justice system can concoct. He has spent most of the last year in solitary confinement and has lost almost 50 pounds from an already trim frame. 
“In effect Neli spends 24 hours a day locked in a segregation cell with minimal human contact for the ‘crime’ of being Autistic,” his lawyers wrote to Virginia Gov. Terry McAuliffe (D). “Absent intervention, there is every reason to think he will remain there until the opportunity for effective treatment has been lost.” 
Solitary confinement can be torture, with serious psychological consequences. For those already suffering from disabilities, the impact can be far more devastating. So it has been for Latson — an especially tragic outcome, given that state mental health officials had arranged, and secured federal funding, for him to be transferred to a locked treatment facility in Florida.  
Because of Latson’s intellectual and emotional disabilities, he cannot safely go into the general jail population. But he also does not have the coping skills to deal with solitary confinement. 
Held in solitary after his initial arrest, Latson responded by urinating on the floor and then licking it up. Moved last spring, after threatening suicide, from regular solitary to a “crisis cell” consisting of an empty concrete room with no bed and a hole in the floor for a toilet, he was Tasered after hitting a guard, leading to another assault charge.  

Maureen Del Duca, a lawyer with two adult sons who are severely Autistic, described Latson’s situation as a “never-ending downward spiral of completely avoidable charges of criminal assault.” When one of her sons lived at the Florida facility that agreed to take Latson, the young man’s violent actions — biting or attacking staff members — were a routine behavior to be handled, not a criminal infraction, she noted.
 
He “could easily be in Reginald’s position . . . tragically entangled in a criminal justice system that is not yet able to deal appropriately” with him, Del Duca wrote to the judge hearing Latson’s case.  
 
The differences between the two men are as obvious as they are jarring: race, for one; resources, for another. 
 
Latson’s case is an individual tragedy that cries out for remedy — Gov. McAuliffe, are you listening? It is also sadly representative of a criminal justice system poorly equipped to deal with issues of mental illness and developmental disability. 

It is maddening for Latson to be trapped in solitary confinement when a safe, therapeutic alternative is available; indeed, that neglect may violate Virginia’s commitments in settling a Justice Department civil rights lawsuit on behalf of those with developmental disabilities. McAuliffe should employ his authority to ensure Latson’s transfer to the Florida facility, where the public would be safe and he would receive treatment, not futile punishment. 
 
“It verges on bizarre to instead lock Neli in an isolation cell at substantial taxpayer expense with the medical certainty that he will eventually emerge worse instead of better,” his lawyers told McAuliffe. 

Latson’s is a sad case. Unfortunately, it is not an isolated one. The criminal justice system must rethink how it deals with the mentally ill and developmentally disabled. And it must do more than rethink — it must halt — the use of solitary confinement in all but the most extreme circumstances.
 
#FREENELI!!

 

Sunday, July 27, 2014

Rally for Ratification of the CRPD!

On Tuesday July 29th there will be a rally in support for ratification of the Convention on the Rights of Persons with Disabilities, CRPD (A.K.A. the “Disability Treaty”) in Washington, D.C.

People will gather at 12:15 pm on Tuesday, July 29th on 3rd Street NW between Pennsylvania Avenue NW and Maryland Avenue SW. 

Also, do not forget to telephone your Senators to urge them to ratify the CRPD if you have not already.  (202) 224-3121

To learn more about the Convention on the Rights of Persons with Disabilities please click on the following link: http://en.wikipedia.org/wiki/CRPD

Thursday, March 13, 2014

Smile BIG


They say it takes more muscles to frown than it does to smile.  This simple idea can be related to the following concept. 
It takes more of your energy to hate and work toward “combatting” something that is a central part of what makes me, me, than is does to accept me as I am.  Helping people is easier than working to get rid of us.  What we Autistics really need is access to services and supports not more work done to try and eradicate us or make us just like you, under the guise of “research”.  We are part of the human fabric and always have been, therefore always will be.  Why fear and hate us when all you need to do is help and encourage us to be the best we can be, we should be given the supports to do so.  We have just as much right as anyone else to be the best we can be.  Too much focus has been on Autistic children, “the epidemic”, and “the upcoming onslaught of Autistic adults”…ummm what about we Autistics adults who are already here and struggling, we deserve to have better lives too.  I am an out Autistic adult, well beyond 22 years of age, past “the transition age” as the would-be allies keep trying to address, but what about those of us after 22?  Do Autistic adults just vanish after they turn 22 years of age because we are no longer in schools and therefore not in the statistics?  Of course we do not disappear, we are still here, we are just as human as you are, we live on and struggle more so than you ever will due to a lack of access to much needed supports, services, etc.  Supports and services for all Autistics are essential for us to be contributing members of society and to be fully integrated.  All Autistics verbal or nonverbal deserve a chance to thrive. 

Why spend more time frowning, in the case of the Combatting Autism Act fighting us and our Autism, instead use your energy and resources to embrace our differences and work with us on our terms to help us to reach our full potentials.  Revise the CAA to incorporate the voices and needs of Autistic people, the very people it should be helping, otherwise get rid of it.
Do something positive and smile, help us.  The bigger the smile the more happy people it will reach and isn't that what helping others does, for you and for me!  :) 

Saturday, February 22, 2014

Promising time for the ABLE Act!


This just might be THE year for the ABLE (Achieving a Better Life Experience) Act!   If you have followed this blog for some time you have read my pleas for you to contact your Senators and Congressmen about it, I have even handed out fliers about it at demonstrations I organize each year.  I thank you for your continued support, this is an important piece of legislation for all disabled people!


Congress Eyeing Tax-Free Disability Savings Accounts

February 21, 2014, By Michelle Diament, Disability Scoop

 

With significant public backing and support in Congress, advocates say federal lawmakers are poised to consider a major change to the money-saving abilities of those with disabilities.

Just one hurdle remains before Congress is expected to take up the Achieving a Better Life Experience, or ABLE, Act.

The bill — which has lingered since at least 2009 — would establish special accounts to allow people with disabilities to save up to $100,000 without risking their eligibility for benefits like Social Security. What’s more, under the plan, individuals could retain Medicaid no matter how much is deposited.

But before Congress can move forward, lawmakers are waiting for the Congressional Budget Office to weigh in with an estimate of what the bill would cost the government if it’s implemented. Once that figure is released — which could happen any day now — Congress is expected to act swiftly with advocates hoping for a floor vote in early spring.

“The ABLE Act is a must-pass piece of legislation for this Congress,” said U.S. Rep. Cathy McMorris Rodgers, R-Wash., who is a member of the House leadership and a co-sponsor of the bill, in a statement to Disability Scoop.

Modeled after the popular 529 college savings plans, the ABLE Act would allow individuals with disabilities to open a special account at any financial institution to pay for education, health care, transportation, housing and other expenses. Interest earned on savings within the accounts would be tax-free.

The bill is backed by nearly every national disability advocacy group and has 63 co-sponsors in the U.S. Senate and 332 in the U.S. House of Representatives representing both political parties. An online petition (http://www.change.org/petitions/u-s-house-of-representatives-pass-the-able-act) favoring the act has generated more than 230,000 signatures.

“The fact that only six bills in all of Congress have this many co-sponsors is a sign of the overwhelming support for this effort to make a major difference in the lives of these families,” the measure’s chief sponsor, Sen. Bob Casey, D-Pa., said in December.

Advocates say it’s about more than just money for those with disabilities and their families. At present, individuals often cannot have more than $2,000 at any given time without forfeiting government benefits. As a result, many people with disabilities decline to seek out paid employment simply because they don’t want to risk losing access to Medicaid and other programs.

“It’s really about self-determination,” said Sara Weir, vice president of the National Down Syndrome Society.

If the ABLE Act passes, Weir said, “individuals can go out and get a job and pay for their own expenses and not be so dependent on the federal government for everything.”

 

Saturday, November 2, 2013

A Call to Ratify the Convention on the Rights of Persons with Disabilities - Take 2!

On Tuesday November 5th the U.S. Senate will hold a hearing to revive the vote for ratification of the Convention on the Rights of Persons with Disabilities (CRPD), it is a very important treaty, there is still time to ask your Senators to support ratification.  To date, 138 countries have already ratified the convention, according to the U.N.
Please support Disability Rights. I encourage you to telephone your Senators and ask them to VOTE FOR RATIFICATION, even if your Senator's office is closed, you can still leave them a voicemail!  
 
The disabled deserve equal rights world-wide!  Make your voice be heard!
 
 Here is a link to the U.S. Senate listings: http://www.senate.gov/general/contact_information/senators_cfm.cfm
 
To learn more about the Convention on the Rights of Persons with Disabilities please click on the following link:http://www.un.org/disabilities/convention/conventionfull.shtml
 

 

Saturday, September 7, 2013

A Call to Ratify the Convention on the Rights of Persons with Disabilities

Today is the 20th Anniversary of International Day of Persons with Disabilities (IDPD) as recognized by the United Nations.

Tomorrow Senators will vote on the ratification of the Convention on the Rights of Persons with Disabilities (CRPD), it is a very important treaty, there is still time to ask your Senators to support ratification. I encourage you to telephone them and ask them to VOTE FOR RATIFICATION, even if your Senator's office is closed, you can still leave them a voicemail, please do so today!

Here is a link to the U.S. Senate listings:
http://www.senate.gov/general/contact_information/senators_cfm.cfm

To learn more about the Convention on the Rights of Persons with Disabilities please click on the following link:
http://www.un.org/disabilities/convention/conventionfull.shtml

Published December 3, 2012 on Google+