“(Right now) Hey! It's your tomorrow. (Right now) Come on, it's everything. (Right now) Catch that magic moment. And do it right here and now. It means everything.” - Right Now by Van Halen – song excerpt
I have started
this post with an excerpt from Van Halen’s song titled Right Now due to the
fact that it is up to us to change this world for the better and make a world
of Acceptance instead of one of fear and hate.
Once again it
is the start of Autism Acceptance Month here in Northern Virginia, our 3rd celebration thanks to my urging in 2011, this time right on the heels of the
CDC’s latest statistical release which will of course add tinder to the fire
for the supposed “Autism crisis”, we are now 1 in 68. The masses have already begun to sound the
outcry. There is no crisis, there never
was, people are confusing access with crisis, we have always been here, it is
just that people are having more access to information sharing and access to
diagnosticians, etc. The internet has played
a big part in this exchange for example.
There is no reason for hysteria that leads to the proverbial men
wielding torches trying to run all us out of town, very much like what was
depicted in Mary Shelley’s Frankenstein.
We are not
monsters to be feared or to be used for exploitation so that a major Autism
“charity” can make more money for their inflated salaries, etc. We are individuals who are all unique and
deserve respect and love.
The propaganda
machine at Autism Speaks churns out misinformation and lies like butter and the
unsuspecting masses “eat it up with a spoon” never realizing that they are
buying into hate and ignorance instead of working toward Acceptance and
understanding. On April 2nd
they held their annual Light It Up Blue campaign, just one such rallying scheme
that Aut$peaks has dreamed up. They
coaxed people all over the world to take part in the “exciting” blue puzzle wave, from Antarctica to Sydney to New York to you name it people turned on blue lights. The masses joined in without realizing that
they too were a part
of the problem and aided in spreading hate.
Autism Speaks is a scary Autism “charity” in that they make you think they are doing something helpful, but in reality only 3% of money raised actually goes to services for us, there are no Autistics on their board, their executives have 6-figure salaries, etc., etc. They exploit Autistics to fill their coffers from pity fund-raising to you name it and have even been known to steal and use Autistics’ words for their own nefarious purposes. I will not go on about them, you can find many sites on the web that decry them, have a look and you too will understand why I will never jump on the Light It Up Blue bandwagon.
Autism Speaks is a scary Autism “charity” in that they make you think they are doing something helpful, but in reality only 3% of money raised actually goes to services for us, there are no Autistics on their board, their executives have 6-figure salaries, etc., etc. They exploit Autistics to fill their coffers from pity fund-raising to you name it and have even been known to steal and use Autistics’ words for their own nefarious purposes. I will not go on about them, you can find many sites on the web that decry them, have a look and you too will understand why I will never jump on the Light It Up Blue bandwagon.
Hate and fear
do not move things forward they keep things where there are, stagnant, building
a wall around positive thought, barring the world from the light of reason and
inspiration, in many cases it turns the cycle in reverse.
What is needed
is real Acceptance for Autistics, in our families, in our communities, in our
schools, and in our workplaces, etc.
From understanding us on our terms, as in actually taking the time to
listen to us, even if we are nonverbal, the true seeds of Acceptance will be
sown and encouraged to grow, fostering new generations to recognize and Accept
the many talents and differences of those who make up humanity.
We need to work
toward Acceptance for all Autistics, ourselves, our children, our family
members, our friends, colleagues, etc.
Acceptance starts with you, it is up to you to move away from “cures”,
“fixes”, “trying to be normal”, etc., encouraging others to do so as well and
move toward a world where differences are just another part of what makes us
human. Autism is a Spectrum; learn to
embrace its many hues of brilliant color.
Even Bob Marley
has something that will inspire you to action with an excerpt from his song
titled Get Up, Stand Up: “Hey, get up, stand
up, stand up for your rights. Get up, stand up, don't give up the fight. Get
up, stand up, stand up for your rights. Get up, stand up, don't give up the
fight”. It is when we quit trying,
fighting, and standing up for what we truly believe in: our Autistic Rights,
the rights of your Autistic children, etc., that we become complacent and lose
a bit of ourselves more and more each day.
We are fighting for such things as the right to not be
bullied (not at school, online, at work, at the store or anywhere for that
matter) for just being and acting as our Autistic selves – stimming, rocking, etc.;
the right to get accommodations that help us; the right to have a voice in the
conversation about us and not to be excluded from it; etc., etc. If you want to make the right world filled
with Autism Acceptance you have to work and fight for it. Talk to everyone you know, even people who do
not agree with you, explain your case for Acceptance, you will run into
naysayers and it may dishearten you, but do not give up, keep trying, in time
those naysayers will understand your message and join the cause. Acceptance benefits all, not just we
Autistics. We can make a better world
for all Autistics. This is something
worth fighting for and to claim for future generations, what we do now will effect
the world they will live in and do we not want to give them something better
than what we have, my answer and yours should as well be a resounding YES!
Please remember
that Autism Acceptance is so much more than you accepting your Autistic
diagnosis or your child’s, it is about society as a whole accepting Autistics
for who we are, verbal or nonverbal, stims and all.
So go forth during this Autism Acceptance Month and every
month hereafter spreading the word about Acceptance, do your part! To echo Bob Marley and Van Halen
respectively, “Hey, get up, stand up, stand up for your rights. Get up, stand
up, don't give up the fight” and “Catch that magic moment and do it right here and now. It
means everything.” Every movement starts with a spark, now is your chance to be that
spark!
There is no time like the present to make a better world!
As ever, I hope that you and your families have a good Autism Acceptance
Month! :)
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