It's been a while since last I wrote anything here, so I have decided to put fingers to keyboard and wish my fellow Autistics peace of mind this April on this last day of March, as we all know April is a sort of hell for Autistic people where instead of people signal boosting our voices they instead drown us out in a sea of "Autism Awareness" and puzzle pieces. April was renamed and reclaimed Autism Acceptance Month years ago by us and many of us fought long and hard for this to be so, especially me, but still non-Autistic people who are truly not our allies in any way, shape, or form continue to support the hate-monger of a "supposed" charity "in support" of Autistics, Aut$peaks, which has been proven time and time again from their financials to you name it that they would rather we not exist further emphasized by their tone policing us at every turn and attempting to silence our voices. I close by urging you to NOT Light it Up Blue this April, but instead if you truly want to support Autistic people please Wear Red Instead and string rainbow fairy lights in celebration of Autism Acceptance Day and Autism Acceptance Month, also donate to Autistic run organizations like Autistic Women & Nonbinary Network (AWN) (awnnetwork.org) and buy from Autistic creators. Thank you. ☮️🐳
Autism Acceptance Digest
Musings from a smiley Autistic.
Thursday, March 31, 2022
A drop of Autistic realness. Welcome back.
It's been a while since last I wrote anything here, so I have decided to put fingers to keyboard and wish my fellow Autistics peace of mind this April on this last day of March, as we all know April is a sort of hell for Autistic people where instead of people signal boosting our voices they instead drown us out in a sea of "Autism Awareness" and puzzle pieces. April was renamed and reclaimed Autism Acceptance Month years ago by us and many of us fought long and hard for this to be so, especially me, but still non-Autistic people who are truly not our allies in any way, shape, or form continue to support the hate-monger of a "supposed" charity "in support" of Autistics, Aut$peaks, which has been proven time and time again from their financials to you name it that they would rather we not exist further emphasized by their tone policing us at every turn and attempting to silence our voices. I close by urging you to NOT Light it Up Blue this April, but instead if you truly want to support Autistic people please Wear Red Instead and string rainbow fairy lights in celebration of Autism Acceptance Day and Autism Acceptance Month, also donate to Autistic run organizations like Autistic Women & Nonbinary Network (AWN) (awnnetwork.org) and buy from Autistic creators. Thank you. ☮️🐳
Friday, November 10, 2017
Wishes on the wind.
Ever since I was very little people have said that I make
mountains out of molehills, as an adult one even told me that I made my own
mountains, when I was little phrases such as these made no sense to me, but as
I grew older I came to learn that it meant that in addition to problems that
life had in store for me that I too added to my struggles. When things are unknown to me my mind goes to
what I call the Bad Place. I catastrophize
the worst outcomes there, never are the outcomes of a positive conclusion, the
more time given between outcomes the worse things become in my mind. Over the years I have made friends only to have them vanish without a word or trace after years, they just stopped being in contact with me, I
still have no idea why. This does not
stop me from remembering them which in turn causes me to type off missives sent
out to the four winds wishing them well and hoping that they will soon be in
touch, sometimes I fill them in on my life, but mostly send them wishes of good
will and hopes that they reply. Years go
by, some even decades, and still I tear up when I think of them and then I write. Some people say, when will I learn, but this
hope hiding beneath the tears is what sustains me, even if in my darkest hours
in quiet night it is long forgotten.
Sunday, June 18, 2017
Saturday, April 1, 2017
Inclusion during Autism Acceptance Month
During this Autism Acceptance Month let us not
forget to welcome the formally diagnosed, the self-diagnosed, those who are
questioning, or those that we might guess to also be on the Spectrum through
our own observations. Autistic-radar is
a thing! Let us extend the hand of friendship
as it were: (please remember that there are those who do not wish to be touched
unexpectedly so treat this as a figurative statement), to the out-casts, the
lonely people, etc. There is a vibrant
support community of like-minded souls, whether you be out or still in closet
as it were, on social media that is available for you to find and suggest that
others seek out too.
I have heard for years that online friends were not
true friends, only those you know in the flesh are, but I beg to differ for
many Autistics we are more at home online than our non-Autistic counterparts
due to the fact that there is no need to attempt to decipher body language,
tone of voice, etc. in order to communicate, there written word reigns supreme. I have been chatting with people online since
1998 and have never looked back, I feel more at home there than anywhere else.
I have never been one to talk about girlie things
like fashion, hair, nails, celebrity crushes, etc. I cannot understand such
interest/cannot relate, I on the other hand crave chats about nature, animals, politics,
movies, tv shows, and books, the latter few tend to be of the sci-fi fantasy
genres respectively. Have always been
more myself and more accepted talking with guys; they always are interested in such
cool things. Groups I tend to frequent
are majority male, for me this is preferable.
I too have been an outcast sometimes even in groups that I have created,
it is hard for me to get to know people/read people; unless things are blatant
I miss things entirely. I have trouble
entering conversations even in a group of people I am familiar with if I come
upon them already conversing, I do not know how to enter in their conversation,
I tend to hang around the periphery and then just disappear.
Many on the Autistic Spectrum struggle to read
people and situations, subtleties are lost on us. This month above all others
please try to welcome someone into your social group or gathering or online chat and be
blatant about your desire for them to join you - someone who moves and acts
like you do it will be appreciated. Make
a new friend, share a smile, include someone new, everyone appreciates being
part of something bigger than themselves.
In closing, please remember that Autism Acceptance
is more than just you accepting your own Autism or that of your child, but more
so as society as a whole accepting Autistic people stims and all on our terms,
together we can make a better a more inclusive world for all.
Happy Autism Acceptance Month to one and all.
Thursday, March 2, 2017
In praise of disability activism.
Many of us in the disability community take part in some sort of activism whether it be solely online or in-person or a combination of the two. I applaud all of our efforts. It really comes down to our level of comfort dealing with people en masse, a.k.a. the number of spoons we have available to us on any given day. Many of us have comorbidities that impact our choices for activism, but that does not mean that the choice we make to take part and express ourselves should be deemed any less important than others are. I for one feel more at home online and have been known to take part in many different protests via twitter and blog posts over the years. Online activists/protesters do not have to hear verbal shouts of derision or face any form of physical violence in-person, that is not to say that one does not encounter violence of another sort where people feel more free to show disdain and spout vile hateful ableist rhetoric online, whatever comes into their minds all the while cowardly hiding behind the safety of their computer screens. Cyber-bullying is just as invasive and in many cases even more so than in-person bullying because when one is home and alone one can still be targeted and harassed no matter the distance away the “attacker” is in the physical world. Such attacks cause just as much PTSD as their in-person physical ones, but in many cases the pain and harm they cause is even deeper. I do not like to invite such attacks so do not engage with individuals one on one online as others in my community to do on a regular basis, I could not take the self-hate and internalized ableism that would be a result of such attacks from awful people trolling the net for the sole purpose of creating havoc and leaving harm in their wake. Face it people many of these perpetrators spew their vitriol for their sheer entertainment and when we take the bait we are playing right into their hands.
I in turn use general political, etc. hashtags and
take part in #cripthevote or just speak my mind in my own personal twitter and
also sign online petitions. Those who do
not engage others in-person but find it makes it easier to express yourselves online do
not think that this diminishes the value of your activism; we too are fighting to make the world
a better place for disabled people. I
applaud Autistics who do engage one on one ,on a regular basis, you are brave
beyond any measure I can express because time and time again you go to battle with
these trolls, lick your virtual wounds and there you are again back in the fray
fighting another day. Many of those who
do go toe to toe with such hateful trolls find strength in the community and
the fact that we do support their efforts knowing full well our own limitations
and lack of spoons to do it ourselves, but as they say someone has too. I applaud the TRUE Autistic warriors taking
on non-Autistic trolls online who only like to bait and taunt us for their own
enjoyment and care nothing of learning the truth about what life is like for
#ActuallyAutistic people. I thank you
for your fighting. Stand strong against
adversity, with every demon vanquished another arrives in your path, let them not
get you down, keep fighting, but also remember to look out for number 1 as they
say, safe-care and knowing ones limits is paramount. Also do not forget to ask for help and advice
when you need it, others may be able to shoulder some of the burden when you
are out of spoons. Don’t let anyone diminish your efforts with hate-speech.
Fight the good fight.
In solidarity.
Tuesday, August 9, 2016
Action Alert! Invisible disabilities under fire!
ATTENTION! URGENT ACTION NEEDED!
In the last day or so, a discovery was shared on social media that a company in Colorado was issued the trademarked phrase: "invisible disabilities", the disability community is up in arms about it. Invisible disabilities are a part of our identities and not something that should be branded as a consumer good.
I urge you to contact your congressman and senators. I just telephoned my mine to bring the following issue to their attention: the phrase "invisible disabilities" has been trademark by Invisible Disabilities Association - US Trademark Registration No. 4315808, in April 2013.
Please contact your congressman and senators at: U.S. Capitol Switchboard (202) 224-3121.
Friday, April 8, 2016
Happy Autism Acceptance Month 2016 to one and all!
As you should already know, just a few short years ago I made a valuable contribution to Autistic History on the local level here in Virginia. While I was on the board of the Autism Society of Northern Virginia I convinced a majority NT (neurotypical) board to shift April from being called Autism Awareness Month to being called Autism Acceptance Month.
Just after joining the board in
2011 I started talking to my fellow members about the importance of Autism
Acceptance, many on the board were parents of Autistic children, both young and
old. I reminded them that what they wanted for their children was to
be accepted not shunned, stims and all. I added that
society was already aware of Autism that what we now needed was to move toward
Autism Acceptance. I stressed that we as a board needed to help to forge
a positive future for Autistics of all ages and to do so we must
move away from awareness. I kept talking about Autism Acceptance
throughout that year and in November of 2011 my continued urging bore
fruit, that majority NT board with its sole Autistic member (yours
truly) voted unanimously to rename April in Northern Virginia - Autism
Acceptance Month. We celebrated our first Autism Acceptance Month in
April of 2012.
Autism Acceptance is not just
something one does during the month of April it is instead something that one
must do every day. Autism Acceptance is an action, it takes effort and understanding, and it is achievable, not insurmountable. There are Autistics
in your community whether you know it or not, they too need to be accepted as
part of that community just like everyone else.
My hope is that one day an Autistic person stimming at a table in a coffee
shop or covering their ears due to an uncomfortably loud unexpected sound will
be common place and not seen as strange.
We are all one community and need to work together to make it a better
one. Autism Acceptance is an important
part of that, not just for the Autistic children growing up today, but also for the Autistic adults who are already here both
diagnosed and undiagnosed. We need Acceptance. Every Autistic contribution should be valued and none discounted, whether they be large are small all are important and valued.
What I have done other Autistics have yet to do; it is a great feat and needs to be remembered as part of our shared Autistic History. I am very proud of my accomplishment and wish others to know it.
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